Meet Raylan Acker, he is 3 years old and loves the water, sun, animals, race cars and trucks. He has a smile that will melt your heart. Raylan was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) on June 20, 2016.


Diffuse intrinsic pontine gliomas (DIPG) are highly aggressive and difficult to treat brain tumors found in an area of the brainstem (the lowest, stem-like part of the brain) called the pons, which controls many of the body’s most vital functions such as breathing, blood pressure, swallowing, and heart rate.

Unfortunately, the survival rate for DIPG is very low.  A diagnosis of DIPG is essentially a death sentence for the child.  Only 10% of children with DIPG will survive two years following diagnosis, and less than 1% survive five years, with a median survival rate of nine months.


We are having a special fundraiser to help Raylan's family offset the cost of his medical treatment.  If you would like to contribute to Raylan's fund, please click the link below. 

 

BE SURE TO SELECT RAYLAN'S FUND FROM THE DESIGNATION DROPDOWN BOX.

 

 

 

 

 

 

You can follow Raylan's journey on Facebook at WE WEAR GRAY FOR RAYLAN.